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May 2012 The idea of forming our Foundation came as a result of not knowing what to do with our emotions after we lost our beautiful daughter to a very rare form of Leukemia known as AML-M7. With the help of family and friends it was decided to honor Kacey's life by helping other families that are battling childhood cancer. During our daughter's 15 month fight, we witnessed many unfortunate consequences of a child being diagnosed with cancer. When Kacey relapsed shortly after completing the standard 5 rounds of chemo normally used to treat her disease, the only option left was for her to undergo a bone marrow transplant. We were relieved to have this treatment option. That feeling quickly went away when we found out that there was not a single match for Kacey in the entire world registry. We were devastated, how could this be?
May 2012 Umbilical cord blood (UCB) contains many stem cells per volume, more than adult bone marrow. In the past 20 years, UCB transplants have saved thousands of people suffering from disorders of the blood and immune system. Since 2005, UCB transplants are known to cure Krabbe's disease , a neurological disease that prevents myelination, and a variety of metabolic disorders . Many researchers have reported that UCB may be beneficial for acquired neurological conditions such as stroke [3-4] and cerebral palsy [5-6].
Apr 2012 Founded by two families who want to see a better life and future for their children with cerebral palsy, Let's Cure CP launched in 2010 as a 501(c)(3) non-profit organization committed to funding the support of CP research. All available funds go directly to research institutions in the United States to fund credible studies and groundbreaking clinical work that take us closer to a cure.
Apr 2012 The vast majority of the media stories about cord blood therapy for cerebral palsy (CP) have been anecdotal reports of children who were treated by the group of Joanne Kurtzberg, MD, at Duke Medical Center. However, there are now multiple trials running around the world and more planned, so it is helpful to compare and contrast some of the trials. This overview is simply meant to be informative, not a comprehensive list or a rating of trials.
Apr 2012 Knee arthritis is a very common problem, afflicting about 1-2 in 10 Americans and getting more common with a heavier population. For some patients with early arthritis (like tears in the meniscus due to age), a common treatment has been arthroscopic surgery. Regrettably, recent research shows that this type of surgery isn't effective. For more severe problems like holes in the cartilage, some patients try micro fracture or autologous chondrocyte implantation (ACI). The micro fracture procedure involves poking holes in the bone to stimulate a less than perfect cartilage repair. The ACI procedure uses cultured cartilage to be placed into the hole and surgically sewn into place. The problem with both procedures is that they don't apply to patients who are older or who have more extensive arthritis. For those patients, the only option is simply waiting until you're old enough to need a knee replacement.
Mar 2012 Preeclampsia is a life-threatening medical condition that complicates about 5% of the pregnancies in the United States. Onset of this disease commonly occurs after 32 weeks gestation but can occur late in the second trimester, and is one of the most common causes of premature birth.
Mar 2012 The Icla da Silva Foundation is the largest recruitment center for the Be The Match Registry in the United States. It recruits over 38,000 new potential bone marrow donors every year, with a strong focus on minority communities. The Icla da Silva Foundation was established in 1992, in memory of the 13-year-old Brazilian girl named Icla da Silva. After three years of fighting leukemia, Icla passed away in New York City, where she came hoping to get her life saving treatment: a stem cell transplant. The young girl never found a matching donor.
Mar 2012 Two hundred years back, the shaman would say to the patient, "Oh, unfortunate man, give me your blood and bring me the blood of a new born, and I shall mix the two and use my magical chants and my secret potions to teach your blood to heal thyself and put it back into you. I tell you that it will work, if you come to me early in your illness, and if you trust me do as told and if you have pure heart and good liver. And if you heal, you will give me your goat, in return."