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About Us

Mission

The primary mission of the Parent's Guide to Cord Blood is to educate parents with accurate and balanced information about cord blood medical therapies and cord blood storage options. This web site explains the motivations for banking umbilical cord blood, and the difference between donating cord blood to a public bank versus paying privately for family storage.

The second mission of the Parent's Guide to Cord Blood is to analyze new developments in medical research or public policy which could expand the use of cord blood.

Organization

 

The Parent's Guide to Cord Blood started out as a website in 1998. It was intended as an informal public service project in memory of Shai, the daughter of the founder Dr. Frances Verter. In 2007 a Board of Directors was recruited, and the Parent's Guide to Cord Blood incorporated as a non-profit foundation. We have received tax-exempt status under section 501(c)(3) of the USA Internal Revenue Code. All donations to support the foundation are eligible for a tax deduction on United States tax returns.

History

  • 1998 - Launch of the original website hosted by GeoCities. The initial version only covered family cord blood banks. The design was donated by Arlene E. Jacobs, in memory of her son Kevin W. Jacobs.
  • 1999 - Added questionnaire for interviewing family banks.
  • 2000 - Added family cord blood banks outside the USA, which at that time only numbered a handful.
  • 2001 - Registered the internet domain name "ParentsGuideCordBlood".
  • 2003 - Added public cord blood banks within the USA.
  • 2003 - Developed the first listing of diseases treated by cord blood that grouped them into the categories: standard, clinical trial, and experimental.
  • 2005 - Moved the site to the host Heller Information Services and adopted a new web design created by Exusu Design of Haselberg, Germany.
  • 2007 - Incorporated as a 501(c)(3) non-profit foundation.
  • 2008 - Created our first educational brochure.
  • 2010 - Modified the list of diseases treated with cord blood to clarify which ones use the patient's own cells versus cells from a donor; again the first web site to do this.
  • 2011 - Launched the first searchable map of USA donation hospitals, for which Dr. Verter received the NMDP 2011 Lifeline Award. This was part of the adoption of a new website created by Fathom Creative of Washington DC, USA, that used searchable databases to manage maps of banks, marketing offices, and hospitals. Adopted a logo designed by Matthew Stevenson.
  • 2012 - Launched a monthly newsletter. Started listing family banks by donation level. Hired Sandeep Kadam for further web development.
  • 2013 - Added public cord blood banks in Canada and Mexico.
  • 2014 - Formed partnerships with the two leading organizations that accredit cord blood banks: FACT-Netcord and AABB. Launched a mobile version of the web site. Hired Pedro Silva Couto, MSc, to help survey cord blood banks around the world.
  • 2015 - Launched our inaugural Cord Blood Industry Report. Hired Lizette Dunay and Dr. Anushia to help answer parent inquiries. Our brochure is now available in a dozen languages.
  • 2016 - Launch a new website designed by Peter Lozovitsky. This one geolocates readers and automatically provides them with cord blood options and banks in their country. We now include public banks worldwide. The website will also offer translations into multiple languages.