Frequently Asked Questions

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Education

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How does the Institute of Medicine influence cord blood education?
Congress commissioned an Institute of Medicine study on the ideal structure of a national cord blood program.  Based on the IoM report, Congress passed the Stem Cell Therapeutic and Research Act of 2005 that was signed into law 20 Dec. 2005.  The key language regarding education is the requirement: Information provided to the maternal donor regard(s) all of her medically appropriate cord blood options.  ie: Education of expectant parents and Informed Consent of maternal donors should cover all options, not just donation.
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How is education from the Parent's Guide to Cord Blood unique?
We are the only organization in the United States providing cord blood education materials that offer balanced information about both donation and family storage, and are approved by an Advisory Panel of leading Scientists and Medical Doctors.
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How is the website of the Parent's Guide to Cord Blood unique?
  • Only searchable map of US donation locations.
  • Only worldwide directory of private/family cord blood banks that is actively maintained.
  • Only website offering a Compare Banks tool that is not a marketing feature of one of the Banks.
  • Only list of "diseases treated" that differentiates between standard vs. experimental therapy, and whether the treatment uses stem cells from the patient vs. a donor. 
  • Only cord blood web site that is accredited by Health on the Net (HON) standards for accuracy and ethics.
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Recommendations from Parent's Guide to Cord Blood
  • Educate expectant parents about all their options for cord blood (Education)
  • Choose a family bank that meets all your national and local regulations, plus has been inspected by an accreditation agency (Lab Standards)
  • Choose a family bank that uses a specialized courier to transport cord blood (Find a Family Bank), or in some countries the family can hire a specialized courier directly (Shipping & Handling).
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What is the benefit of HON accreditation of the Parent's Guide to Cord Blood website?
Health on the Net Foundation (HON) is an international non-profit under the United Nations that is dedicated to inspecting and accrediting medical websites for accurate and ethical content.  Websites accredited under the HON code are committed to abide by these 8 principles:

  1. Authority - Give qualifications of authors
  2. Complementarity - Information to support, not replace physician
  3. Confidentiality - Respect the privacy of site users
  4. Attribution - Cite the sources and dates of medical information
  5. Justifiability - Justification of claims / balanced and objective claims
  6. Transparency - Accessibility, provide valid contact details
  7. Financial disclosure - Provide details of funding
  8. Advertising - Clearly distinguish advertising from editorial content

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What is the role of the Parent's Guide to Cord Blood Advisory Panel?
Our panel of scientific and medical experts reviews and approves our educational brochures.  Each member may assist with development of new web content in his or her area of expertise.  The panel is also on-call to answer difficult questions from readers.