About Parent's Guide
to Cord Blood Foundation
The primary mission of the Parent's Guide to Cord Blood is to educate parents with accurate and balanced information about cord blood medical therapies and cord blood storage options. This web site explains the motivations for banking umbilical cord blood, and the difference between donating cord blood to a public bank versus paying privately for family storage.
The second mission of the Parent's Guide to Cord Blood is to analyze new developments in medical research or public policy which could expand the use of cord blood.
The Parent's Guide to Cord Blood started out as a website in 1998. It was intended as an informal public service project in memory of Shai, the daughter of the founder Dr. Frances Verter. In 2007 a Board of Directors was recruited, and the Parent's Guide to Cord Blood incorporated as a non-profit foundation. We have received tax-exempt status under section 501(c)(3) of the USA Internal Revenue Code. All donations to support the foundation are eligible for a tax deduction on United States tax returns.
- 1998 - Launch of the original website hosted by GeoCities. The initial version only covered family cord blood banks. The design was donated by Arlene E. Jacobs, in memory of her son Kevin W. Jacobs.
- 1999 - Wrote questionnaire for interviewing family banks.
- 2000 - Added family cord blood banks outside the USA, which at that time only numbered a handful.
- 2001 - Registered the internet domain name "ParentsGuideCordBlood".
- 2003 - Included public cord blood banks within the USA.
- 2003 - Developed the first listing of diseases treated by cord blood that grouped them into the categories: standard, clinical trial, and experimental.
- 2005 - Moved the site to the host Heller Information Services and adopted a new web design created by Exusu Design of Haselberg, Germany.
- 2007 - Incorporated as a 501(c)(3) non-profit foundation.
- 2008 - Created our first educational brochure.
- 2010 - Modified the list of diseases treated with cord blood to clarify which ones use the patient's own cells versus cells from a donor; again the first web site to do this.
- 2011 - Adopted a new web design created by Fathom Creative of Washington, DC, USA. This design features databases and searchable maps.
- 2011 - Launched the first searchable map of donation spots across the USA, for which Dr. Verter received the NMDP 2011 Lifeline Award.
- 2012 - Hired Sandeep Kadam to spearhead further web development. Launched a monthly newsletter. Started listing family banks by donation level.
- 2013 - Added public cord blood banks in Canada and Mexcio to the donation map.
- 2014 - Formed partnerships with the two leading organizations that accredit cord blood banks: FACT-Netcord and AABB. Launched a mobile version of the web site.